Desmoid Defenders 5K Run/Walk

09/16/2026

💛 GOLD SPONSOR APPRECIATION! 💛

We are incredibly grateful for our Gold Sponsors who stepped up to support the Desmoid Defenders 5K Run/Walk! 🩵💜

THANK YOU TO OUR GOLD SPONSORS!

Your generosity is helping us bring our community together to support Maeve and the Long family, raise awareness for desmoid tumors, and raise important funds for the Desmoid Tumor Research Foundation (DTRF).

Defending today for tomorrow.
🩵 Awareness • 💜 Research • 🩵 Hope

St. Louis Hero Network
Will Bates
Christiana Rossi

09/15/2026

🩵 SPONSOR APPRECIATION 🩵

As we count down to the Desmoid Defenders 5K Run/Walk, we want to take time this week to recognize the incredible sponsors who have stepped forward to support Maeve, our event, and the Desmoid Tumor Research Foundation.

🌟 PLATINUM PLUS SPONSORS 🌟
Our top contributors:

💜 Dr. Jeanne & Rex Sinquefield
🩵 Laura Wehnes | Wehnes Group

Your incredibly generous support has made a tremendous impact on this event. Because of sponsors like you, we are able to bring our community together to raise awareness, support research, and bring hope to families affected by desmoid tumors.

We are so grateful that you chose to stand behind Maeve and the Desmoid Defenders! 🩵💜

THANK YOU for helping us DEFEND TODAY FOR TOMORROW!

09/14/2026

‼️ ATTENTION Desmoid Defenders ‼️

Apologies for the delay in getting PACKET PICK UP info to you. An email has been sent out and details are below! ⬇️

👕 IMPORTANT: PACKET PICKUP DETAILS BELOW! 👇

📅 Thursday, September 17, 2026
⏰ 12:30–6:00 PM
📍 Big River Running Company
5352 Devonshire Ave.
St. Louis, MO

👕 CHECK OUT THE EVENT SHIRT REVEAL!

Stop by on Thursday to pick up your race packet and everything you need to be ready for SUNDAY! 🏃🏽‍♀️🤗

If you’re unable to pick up your packet, someone else may pick it up on your behalf. Please make every effort to collect your packet during Thursday’s pickup window.

Packets will be available for pickup on Sunday morning from 8:00–8:45 AM, before the event, for those unable to pick up on Thursday. 

Race announcements will begin promptly at 9:00 AM! 📣

Desmoid Defenders 5K Run/Walk
📅 Sunday, September 20th @ 9:00am
📍Queeny Park at the Smith Shelter
550 Weidman Rd, Ballwin, MO 63011

We are incredibly grateful for the support surrounding Maeve, the Long family, and the Desmoid Tumor Research Foundation. Every runner, walker, volunteer, sponsor, and supporter is helping us raise awareness, support research, and bring hope!

We can’t wait to see all of our Defenders! 🩵💜

09/14/2026

The St. Louis HERO Network does so much for our community every single day, and we are incredibly grateful that they stepped forward as a Gold Sponsor of the Desmoid Defenders 5K! 🩵💜

Thank you for your generous donation and, most importantly, for your continued dedication to supporting our local first responder and military families. 💙🇺🇸

We are so thankful to have the St. Louis Hero Network standing with Maeve and the Desmoid Defenders! 🏃‍♀️💪

Thank you Charlie Metzner for all you do for our community!

https://stlheronetwork.com/

www.facebook.com/stlheronetwork

09/13/2026

🚨 ONE WEEK AWAY! 🚨

The Desmoid Defenders 5K Run/Walk is NEXT WEEKEND! 🩵💜🏃‍♀️🏃

There’s still time to sign up and be part of this special day for Maeve! Let’s fill Queeny Park with Defenders and show Maeve and her family just how big this community of support can be. 💪💜

🎉 And there’s even more to celebrate — Maeve turns 15 the day after the race! 🎂 Ann will have a special treat to start her celebration weekend! Let’s make this birthday weekend one she’ll never forget!

🧢 Commemorative hats are still available to order!

📅 September 20 | Queeny Park
🩵 Run for Maeve. Run for Research.
🔥 ONE WEEK — LET’S GO, DEFENDERS!

👉 REGISTER TODAY:
https://runsignup.com/Race/MO/SaintLouis/DesmoidDefenders5KRunWalk

Every registration helps us raise awareness, support research, and move closer to a cure!

09/12/2026

👏 ANOTHER SPONSOR DONATION! 👏

We continue to be amazed by the support for Maeve and the Desmoid Tumor Research Foundation! 🩵💜

A huge THANK YOU to Prime Performance for supporting the Desmoid Defenders 5K Run/Walk! Your generosity helps us continue raising awareness, supporting research, and bringing hope to families affected by desmoid tumors. 💪

🔗 https://primeperformancestl.com

📍 Be sure to check out Prime Performance STL in Fenton, MO! They offer a holistic approach to health and wellness, with personalized treatment plans designed to address the root cause of health concerns.

We are grateful to have you as part of our Defender community! 🩵💜

Awareness • Research • Hope

Prime Performance offers personalized hormone therapies, medical weightloss, and vitamin solutions for men and women. Book a consultation!

09/10/2026

A special THANK YOU to Dean and Chico at The GRIND Fitness and Sports Performance for partnering with our event! 👏

Your contribution to our event and the impact you are making with Maeve is so important. Shout out to Trainer Christiana Rossi for spreading awareness! 🩵

The Grind provides 1:1 personal training, group fitness classes, and small group training for everyone! 💪

Check them out 🔗 thegrindfs.com

FB 🔗 https://www.facebook.com/thegrindfitandsport

09/09/2026

🎉 🩵 WE DID IT, DEFENDERS! 🩵🎉

We officially reached 150 REGISTRATIONS! 📣 🏃‍♀️🏃‍♂️

The incredible community support 🩵 has been amazing—and we’re NOT stopping here! 🙌

👕 We ordered EXTRA T-SHIRTS for participants, so let’s sell them ALL OUT!

🏆 Still time to BUILD YOUR DEFENDER TEAM and compete to win a special gift presented by Maeve!

🙋‍♀️ We’re STILL LOOKING FOR VOLUNTEERS to help make race day a success!

👉 REGISTER • BUILD YOUR TEAM • VOLUNTEER 🔗
https://runsignup.com/Race/MO/SaintLouis/DesmoidDefenders5KRunWalk

09/09/2026

💎 PLATINUM SPONSOR SHOUT-OUT! 💎

Huge thanks to Laura Wehnes and WEHNES GROUP REAL ESTATE for supporting the Desmoid Defenders 5K Run/Walk! 👏

Your generosity helps us Run for Awareness, Research, and Hope for families affected by this rare disease. 💜🏃‍♀️🏃‍♂️

THANK YOU for making a difference! 🤗

🌐 WEHNESGROUP.COM

09/08/2026

A HUGE thank you to Matt Helbig and Big River Race Management for partnering with us! 🤗

We are so grateful for their partnership in providing the timing and race management services for the Desmoid Defenders 5K Run/Walk! 🏃‍♀️🏃‍♂️

Their support is helping bring our community together to raise awareness, support Maeve, and help advance research for this rare disease. 💜

We couldn’t do this without incredible community partners like them! Thank you for being a Defender! 🩵💜

https://www.facebook.com/bigriverracemgmt

https://brrm.com