The Tradition - St. Paddy's Day Golf

09/25/2024

Lives get busy. Time goes by quickly but this video popped up on my memories today. I have to admit that sometimes I forget how much trouble he was in. I think it’s a coping mechanism. As you may contemplate sponsoring or playing or donating to the 12th Annual CureNFwithJack Atlanta Golf Classic, perhaps this brief 10 minutes from a few years back will see you once again joining in our fight that simply is not over. I hope it does. Thanks. https://www.criver.com/eureka/the-crusade-to-cure-jack-video?

A family finds purpose after a life-changing diagnosis of neurofibromatosis

09/24/2024

5 years ago at a conference with Charles River Labs. On the left is a picture of Jack and I when he was just a baby and I was a scared father wondering what lay ahead. 14 plus years later, I had the privilege of being on a stage helping him fight for his life and in awe of his strength, dignity and valor. His fight has become more complex which is why we need YOU to come to the 12th Annual CureNFwithJack Atlanta Golf Classic event in November. Learn more HERE! https://secure.qgiv.com/event/2024atlgolf/?

09/13/2024

So, today is Friday the 13th and supposedly, for many, it represents bad luck and thoughts of Jason Vorhees. But what is really scary every day is . What is really bad luck is when you become the ONE in 3,000 people that are born with NF. We are trying to change that through our funding of research and our events like the 12th Annual CureNFwithJack Golf Classic. Feel lucky today and sign up to play, volunteer or sponsor. Early bird is almost over. Thanks for the support! https://secure.qgiv.com/event/2024atlgolf/?

Mark your calendars for Monday, November 4 for The CureNFwithJack 12th Atlanta Golf Classic! This year's proceeds will benefit the Walker Lab at Massachusetts General Hospital - a Harvard-affiliated lab dedicated solely to NF1 research, where we will continue to support a postdoctoral research fello...

11/27/2020

When you golf in the “Tradition” this is what you help. Thank you all

Jack Burke describes himself as an average teenager but his fight against a rare genetic disorder that causes multiple tumors on the body has inspired people who want to help find a cure for his condition. His resiliency over the years has resulted in a total of $3 million in donations towards resea...

03/31/2020

If you support Cure NF with Jack I would like you to read this and recognize what you help to do. We are moving closer to a cure everyday. Thank you all. See you on June 19th!

Investments in LGG research to transform patient care: congratulations to Gilbert Family Foundation for sponsoring first-rate consensus workshop and gratitude to Synodos LGG donors

03/20/2020

Hi folks. I hope this email finds everyone safe and happy. As we know this is a struggling time for our friends in the restaurant business. Locally, here in Milton, GA I have two great friends who own restaurants, Bobby Gray Bobby G's Chicago Eatery and Doreen Fortey Doster at 'cue both on highway 9. EVERY year and throughout the year they both step up to support Cure NF with Jack. My family supports them and has for years because simply the food, service and atmosphere is top notch. What I am asking here is that if your family decides to do curbside or take out over the next few days or weeks PLEASE consider these two great people and their staffs. Grab something to go and maybe buy a few gift cards for future use?! Neither of them asked me to write this but I know they BOTH would appreciate the patronage. If you want to hear stories about phenomenal local businesses who support the community I've got a few for you about these folks. THANKS for the consideration.

03/13/2020

It is with great disappointment but out of concern for our players, volunteers, staff and the overall community we need to POSTPONE the Tradition. We are disappointed but know this is the right thing to do. We will be moving to June 19th (Friday) and celebrating St. Patrick in June and killing tumors!! Thanks for your support and understanding and see you in June!

01/28/2020

Here it is!! 2020 tournament sign up link! Get signed up before we sell out! We always do! https://app.donorview.com/0PPjy

01/24/2020

Happy Birthday, Jack O’Brien Burke!! He’s hoping to see you at The Tradition on 3/17/20!

01/14/2020

Save the date 3/17/2020!!!! More details to follow!

03/28/2019

I know occasionally I ask you to watch or read something. I’m doing it again. If you do I think you will thank me. You should be inspired, grateful and reminded of how incredible some people are in this world. Thanks Adam Pearson, we’re way overdue for a pint here in Atlanta GA!

Though they share the same DNA, the Pearson twins’ disability has manifested in different ways.