09/19/2023
Hey, Grouper Nation! Please see the note below from fellow Grouper and great friend John Ruddy, please support if you can!
Father Time here, with a message about someone near and dear to me, a kid who simply has very little time.
As some of you may know, my 7-year-old grandson Townes has Duchenne Muscular Dystrophy (DMD), a degenerative muscle disease that slowly robs children—mostly boys—of their muscle function, until eventually they’re confined to wheelchairs and have trouble performing simple tasks. Townes’ chronic disease affects him and his family in all aspects of life: socially, cognitively, emotionally, physically, and educationally.
It’s terminal…but it ain’t over ‘til it’s over.
He got his first wheelchair recently. And when Make-A-Wish treated him to Disney World, he exclaimed he “was the luckiest kid alive!”
Still, his time is ticking.
Townes will never play baseball; he doesn’t have time for it, literally. He’s an artist, builder, fix-it guy, racer, musician, movie critic, popcorn connoisseur, friend, brother, cousin and all-round funny dude—funnier than his grandpa, can you believe that? He made it through his first in-person school year and is now in second grade.
So here’s my pitch: Would you be willing to help Townes and others like him by supporting my daughter Nikki Witt’s fundraising efforts with a donation to the Race to End Duchenne campaign? Your tax-deductible gift will make a difference in the lives of many. It’s easy to support this great cause —simply click on the link to the Together 4 Townes page below and follow the easy DONATE process. (You can skip the JOIN TEAM button.)
https://donate.parentprojectmd.org/team/517656
If you’d prefer, you can send your tax-deductible contribution to the address listed below. Please indicate on the check or with a note that the donation is in support of Townes Witt or Nikki Witt.
Parent Project Muscular Dystrophy
1012 14th NW, Suite 500
Washington, D.C. 20005
Any amount, great or small, helps in the fight to end Duchenne. And thanks to you, Townes and others like him may get a little extra time.
Thank you!
Father Time (aka Rudds, Old Man River, plain ol’ John)
Race to end Duchenne, for Townes and for everyone impacted by this disease. Join us to raise money for PPMD, an organization that impacts policy, demands optimal care for every single family, and strives to ensure access to approved therapies.
