06/14/2018
Announcing this week’s featured rider…Ruby Tillinghast!!!
At just six years old, Ruby is our youngest Featured Rider to date! Ruby’s parents, Jill and Matt, describe her as big hearted, ambitious, full of adventure, spunky and a little shy. She loves going on school field trips, hanging out with her friends and of course riding her bike!
Ruby was our youngest DEVO athlete last year. Lincoln DEVO (https://www.facebook.com/LincolnDEVO/) is a youth mountain bike skills summer camp. Ruby showed up fresh off training wheels to celebrate her 5th birthday at the first DEVO practice of the season. Smile beaming, bike gleaming, Ruby tackled every obstacle with the bravery and tenacity of someone twice her age. Her joyful, radiant, and oh so determined personality immediately won the heart of every DEVO coach, as well as all the other athletes participating that summer!
Like most six year olds, Ruby has boundless energy, mountains of imagination, and the most heart melting smile you’ll ever see. Unlike most six year olds, Ruby has never been in a bounce house, has to be extremely careful with what she can eat, and has spent much of her young life in and out of hospitals fighting a rare blood disorder called Idiopathic Thrombocytopenia Purpura (ITP).
ITP is characterized by low platelet levels, which results in reduced clotting of the blood. This can lead to spontaneous bleeding from the mouth, nose, or skin abrasions and in serious situations can result in a brain bleed, stroke, or death. At 16 months old Ruby was diagnosed with chronic ITP, which is both uncommon in children and has no cure. Despite this diagnosis, Ruby and her parents have chosen NOT to let ITP define them. Rather they proceed with caution and often modify normal activities to allow Ruby to be able to participate safely. You can learn more about Ruby and her battle with ITP here: https://drive.google.com/open?id=1w--bSWw88IHmB9XqDKHlt0hBY6Ra1uCC
Also check out this video interview of Ruby's parents talking about ITP:
https://youtu.be/f0o00JePTPk
, ,