11/03/2025
Kai still hanging tough...
Before another update I want to start with a big huge THANK YOU. Though Kai may be going through the thick of everything he definitely knows he is NOT ALONE. He has the support and love of so many so THANK YOU for continuing to reach out, continuing to pray for and continuing to support him and our family. We truly are blessed to have amazing people in our lives.
We are on a relentless pursuit to find a treatment for Kai that works and hats off to our amazing hemotology/oncology team at MD Anderson and City of Hope for being as persistent and relentless as Kai is. They have been working hard to push boundaries, play with fine lines between harm and health and trying desperately to get Kai home to family and friends.
Kai left for the Gorge on July 11th and has yet to make it back to Hawaii. He was able to celebrate his 50th with family and friends there and headed straight to MD Anderson. Had a 2+ month stay there at the hospital where his initial clinical trial failed then tried a bi-specific antibody called Teclistamab that unfortunately did not yield the results he needed to get the disease under control. After two failed attempts and way too much time away from the kids we decided to pull the kids early for fall break and meet us in California.
Kai originally did his stem cell transplant at the City of Hope in California in August of 2022. There, they were able to harvest a large number of stem cells and used half for his transplant and saved the other half. The idea for his third treatment attempt was doing high dose chemo and then a stem cell “boost” adding back his stem cells after chemo.
Kaiʻs parents and the kids flew up and were able to hang with dad at the City of Hope while he underwent the high dose chemo and stem cell boost. He tolerated it well however it unfortunately did yield the results we wanted. The intention was to bring the Myeloma down a bit so that when he starts a new immunotherapy it has a better shot at working. The chemo seems to have brought it down a little but not a lot. We are still staying the course and heading to Houston tomorrow, Nov 4th to start a brand new treatment, Blenrep. It just got approved by the FDA and has yielded some good results. With a number of failed treatments we are putting all our eggs in this basket to give us more time with Kai.
We are praying hard for this treatment to work so he can get home. Being away from home and the kids has by far been the hardest part for him. As always he never really complains and does what is asked (needles and nasty side effects). He handles it all like the champ he is and just takes it on one day at a time. It has been hard to see him trapped in four walls but he keeps the fight, the fight to get back on the ocean and be with the people he loves.
This journey is tough. We are all doing the best we can given the situation. Kai and I both have amazing parents that are staying strong and basically raising our children right now. They have been with the kids since the start of school so they are attending teacher conferences, making soccer snacks and taking kids to holiday events. I have no idea what we would do without them. We are so lucky and THANKFUL to have amazing parents and siblings. It absolutely breaks my heart to think about how strong the kids are having to be not knowing when mom and dad are coming home again and continuing in their new environments. Thank you to those who reach out and do things with/for the kids, it truly helps a ton.
Through all of this we still have so much light, here are a number of photos of everything over the past couple months. Weʻve met with friends in Houston, weʻve been able to spend time with the kids when they came to California, weʻve had amazing friends in California get Kai out to events and on the ocean just to stay sane.
As you can imagine itʻs is a roller coaster of emotions with some days being better than others. Thank you to those of you who reach out to Kai, please continue to do so. If he doesnʻt pick up itʻs likely because he is sleeping but know that he receives and hears every message so THANK YOU.
Getting him a boost of platelets and possibly blood today to then fly to Houston tomorrow and start the first dose of Blenrep on Thursday. Fingers crossed this works and we can make it home in time for the Holidays. Our sons favorite holiday of the year is Friendsgiving - would be amazing to make that a reality.
MAHALO again for all the love! Will try to get Kai to do a video to check in.
