09/09/2026
For Brenten and Bennett Blakeman, the fight against ALS is deeply personal.
Their grandfather, Dave McConnell, was diagnosed with ALS in 1994 and passed away in 2006. That same year, their mom, Ellen McConnell Blakeman, was also diagnosed with ALS.
Turning their family’s experience with ALS into a mission to raise awareness and fund research, the McConnell and Blakeman families founded A Long Swim in 2011.
After Ellen’s passing in 2018, they established the Ellen McConnell Blakeman ALS Research Fellowship at the Ozdinler ALS Research Lab at Northwestern University, providing an additional researcher to help advance the search for a cure.
Today, they continue the work their mom started, carrying her legacy forward and helping build a future without ALS.