06/13/2020
Hammerfest Athletes and Friends:
Regrettably, and due to a confluence of circumstances, we are canceling this year’s Hammerfest Triathlon that was scheduled for September 20, 2020. Our decision rests mainly on vital safety concerns for athletes, volunteers and the many spectators who have all contributed to make Hammerfest one of the most enjoyable and popular triathlons in Southern New England. Most importantly, over its 20+ years, Hammerfest has been a catalyst for major, life-altering change in the struggle to stop the progression of Adrenoleukodystrophy (ALD). Our main benefactor, Brian’s Hope, has led the way to effect nationwide changes that have improved the lives of ALD patients and their families.
On behalf of Brian’s Hope and the Kelley family (Brian, Jean, Jack Kathleen & Patrick), please accept our heartfelt thanks for your continued support of Brian’s Hope in its mission to stop the progression and deleterious effects of ALD. With your participation throughout Hammerfest’s 20+ years, the event provides a platform to effect measurable and meaningful progress combatting ALD. With Hammerfest as a partner and through its leadership, Brian’s Hope has funded novel research to achieve breakthrough treatments for patients, broadened an awareness of ALD and promoted nationwide newborn screening for ALD.
Nowhere has Brian’s Hope been more influential than in expanding nationwide newborn screening for ALD. In 2015 only NY and CT were screening newborns. Now, through the efforts of Brian’s Hope and other advocates across the country, 16 states and Washington, D.C. are testing babies for ALD. Because many of these States have some of the highest birth rates, over 50% of babies born in the US are being tested. By the time Hammerfest 2021 rolls around, we hope to report that even more States will be testing newborns.
On behalf of the entire Kelley family, please accept our heartfelt gratitude for embracing Brian’s Hope as it continues to spread ripples of change, courage and hope to ALD families and throughout the entire ALD community.
Keep Hammering and see you in 2021,
Race Productions, LLC (Ron, Mike, Scott & Margit) Brian’s Hope (Brian, Jean, Jack, Kathleen & Patrick)