02/04/2024
Today is autism awareness day 💙💚💛❤️
What is a parent carer? 👨👩👧👦
It's staying at home with our feet up all day,
While others work our wages they pay.
Its getting the offers, the discounts and deals,
All to help with our child's extra needs.
It's the DLA we get for no reason,
It's jumping the ques while others stand freezing.
It sounds so easy if these perceptions were true!
Here's a few truths I'll share with you.
It's the bruises we hide from the meltdown last night
From holding them until they had no more fight
Its the regimented life that we now live
For a family meal out what we wouldn't give
It's the sleep we don't get and the nights out we miss
It's the explanation to others about all of this
It's the fights that we face in every single way to get their needs met at the end of the day
Its the story you tell for the hundredth time to various people, you want to cry
It's the tears we hide because we're scared we're not coping
It's the smiles we paint on there's no use in moping
It's the splints we fit and the exercises we do physio, nurse and chef we are too.
It's the appointments to remember with doctors and dentist to be honest I'm not sure how were not all demented.
It's the progress reviews we sit through at school hearing their struggles it all seems so cruel
Its the stares in the playground, the parties they dont get asked too
It's explaining to them why on the 10th time they've asked you
It's buying the 12th pair of shoes in a term because our children destroy them when will they learn
It's fighting the system that's already broke
But carrying on with hope against hope
Its apologising first for what is to come the courage to go out when you'd rather stay home
It's educating teacher family and friend about the conditions and that they wont mend
It's the guilt that we feel that were not always enough and our children's siblings who have it rough
It's the schools changing routines that make our day and impacts our child in every way
It's wanting to work but not having the time it's the desperation to have something that's solely mine
It's the not giving up when the going gets tough
Its a appreciating the smooth and riding the rough
It's the smiles that they give you and the light in their eyes
It's the ' I love you's' that take us by surprise
It's the others you meet in this new way of life that gets you through the troubles and strife
It's the strength you didn't know you possessed it's the times you went on even when you were stressed
Its the love that you have for your child who is special that gets us through these tasks
but some understanding and empathy from others is not too much to ask!
At this time the Author is unknown but whoever wrote this is amazing
