15/01/2020
Kia ora all member's of Maori In Perth, and Bindjareb Murray players and members I was contacted by the family to help our little angels I have asked cuz Jo if she could post this up on Maori in Perth her post is
I am posting this on behalf of Kyron and Martika Winmar.
I had been contacted by Morehu Heta-Tohu asking if we can help to purcahse an Air Conditioner for Kyron Jnr, I visited the house today to meet the family and found they were all gathered in an open plan living area of the 4 bedroom house trying to cool Kyron Jnr down as his temperature was a bit high. They have a portable Air Con which can be moved into Kyron's bedroom however he is in the living room with the family throughout the day.
Morehu has been offered a brand new Split System Air Con still in the box valued at $4000, we have been offered this for $1000 and instalation $1000.
This little boy needs our help as soon as possible so please donate toward keeping Kyron comfortable and cool.
All donation's to:
Wairua Tipuna Account
Bsb: 036231
Account number: 149392
Hi, our names are Kyron McGuire Snr & Martika Winmar...Our Boy Kyron McGuire Jnr who is 5 and a half years old. On the 10th of January 2018 Kyron Jnr was unfortunately diagnosed with an agressive stage 3, with some signs of stage 4, rare form of brain tumor aka DIPG. Battling the pain while showing very few symptoms, we noticed day by day in the three days before taking him to the hospital his body started to slump to one side and had trouble keeping his balance while walking and falling over twice. On the 3rd of January his face drooped on the same side his body was slumped, so we took him to the local ED. The doctors put him in for an MRI, halfway through they stopped and rushed us back to the Ed and said they found a large mass on his brain and were unsure of what it was yet, but insisted we should call our families and let them know. We were then transferred by Ambulance to Princess Margaret Hospital where we later found out it was a brain tumor the size of a 50c coin. On the 5th of January he underwent surgery to safely remove as much of the tumor as possible. After removing 60-65% of it successfully, we only hoped & prayed it was a benign tumor not malignant. Unfortunately the odds were against us and the results came back much worse than what the doctors and we ourselves expected. Then to find out the rarity of his cancer and there is no known cure as surgery had already been ruled out, radiotherapy being the only treatment to try and contain it (the cancer) but wasn't a curity for it and couldn't be given a prognosis. Since he was admitted Kyron Snr hasn’t been able to work his usual hours, being the main source of income but family always comes first, now planning for the big road ahead trying to remain strong for him...Kyron is an absolute beaming light in our lives, a bubbly, witty, happy, strong and beautiful 6 year old boy. He lights up our world and is always there to put a smile on our face
