11/23/2019
So is coming to an end and it felt the need to remind me it's still here&¬ going anywhere! This is the difference between 24hrs
I was having problems with my hips recently and still haven't found out why but the pain quickly turned into a major flare up within a couple of days. And now I'm back to using a cane for a bit.
has no cure. Only experimental treatments. It is, so far, the most painful condition recorded, but still unheard of. Having to explain my condition over and over again to the ER staff every time I get a bad flare, is beyond frustrating. Especially when the pain is so bad you can hardly breathe.
At times the doctors will treat you as if you're lying, making something up just to get high off medications when is a legit diagnosis. They'll let you sit there screaming and shaking in pain and say things like "you can wait a few extra minutes, it won't make that big a difference" then shut the door so you don't "disturb other patients".
Quite often we have to tell the doctors exactly what medications and doses we need to be treated with because they won't know how to treat you otherwise. It's a nightmare to say the least.
Thankfully, last night this wasn't the case, although no one there had ever heard my illness, they treated me like a human being. Which was the first time that's happened in a very long time.
I got blessed to have had successful Implant and somewhat decent pain medications that help me day to day, along with (yes) yoga.. idk why these methods worked for me and not others but it did.. unfortunately, regardless of how well treatments go, Chronic Regional Pain Syndrome does NOT go away.
The pain is severe and unrelenting.. I spend most my days relying on pain killers and other medications.
sucks... We can only be transparent in sharing our stories to raise awareness.
To all my warriors out there, I see you, I love you, I'm right here fighting with you and for you.
🖤 @ Vassar Brothers Medical Center
