Vroom Old Man - Indian 125+ for Myotonic

Vroom Old Man - Indian 125+ for Myotonic As many of you know, I'm passionate about riding and pushing boundaries, but today, I’m doing something even more special.

Today, I’m not just riding to break records — I’m riding for a cause that has touched my family in ways words can’t fully capture.

09/15/2026

Today is International Myotonic Dystrophy Awareness Day. 💚

A major part of the Mission has always been to raise awareness, start conversations, and help educate others about Myotonic Dystrophy (DM).

Today, we’re asking for your help.

📣 Start a conversation.
💚 Wear green in support of Myotonic Dystrophy.
📲 Share this post.
📚 Help educate someone who may know little—or nothing—about Myotonic Dystrophy.
💚 Follow and share the Myotonic Dystrophy Foundation page.
🚴 Learn more about the Ride and help us spread the word.
💚 Donate if you can.

Every share, conversation, and new connection helps bring greater visibility to the DM community. Together, we can help more people recognize Myotonic Dystrophy, understand its impact, and support those living with it.

Awareness starts with us. Let’s keep the conversation going.

09/15/2026

🔬🧬Over 40 leading biopharmaceutical companies & institutions are racing to develop promising research which may lead to the first FDA approved treatments and a cure for . 💚🔗Support DM research & drug development, raise awareness on Sept 15: https://www.myotonic.org/international-dm-day

09/15/2026

The Myotonic Dystrophy Foundation is uniting the DM community to improve care and accelerate progress towards a cure.

Help us raise awareness, tomorrow Sept 15th is International Myotonic Dystrophy Awareness Day.  Talk to people about the...
09/15/2026

Help us raise awareness, tomorrow Sept 15th is International Myotonic Dystrophy Awareness Day. Talk to people about the disease, direct them to the Myotonic Dystrophy Foundation website or the ride page. Keep the Mission going …

Due to the varied and complex symptoms of , people living with DM need a coordinated system of care! 🌐 Support better access to care and awareness in healthcare professionals by spreading awareness on Sept 15! 💚🔗Learn more at: https://www.myotonic.org/international-dm-day

Tomorrow is International Myotonic Dystrophy Awareness Day, please show your support and help raise awareness by wearing...
09/14/2026

Tomorrow is International Myotonic Dystrophy Awareness Day, please show your support and help raise awareness by wearing green.

Take a picture and post it to social media, tag the page, let’s create a wave of green.

Talk about it, direct people to the ride page or the Myotonic Dystrophy Foundation page. Help us help those who suffer from this disease.

As the most variable of all known genetic conditions, looks different for everyone! 🔬🧬Help improve access to care and advance research for treatments by supporting Awareness on September 15th! 💚🔗Learn more at: https://www.myotonic.org/international-dm-day

Wear green on Tuesday, September 15th in support of International Myotonic Dystrophy Awareness day.
09/13/2026

Wear green on Tuesday, September 15th in support of International Myotonic Dystrophy Awareness day.

Clinical education is critical to help doctors recognize . 🩺 Early diagnosis and care can save lives! Improve DM medical education by supporting Awareness on Sept 15th! 💚🔗Learn more at: https://www.myotonic.org/international-dm-day

09/13/2026

Reflecting on my 25th anniversary memorial ride honoring the lives impacted by September 11, 2001, I realized there was something deeply personal I had never shared.

My dad was an iron worker and welder who helped build the Twin Towers. I was there the day they came down and remained there for the month that followed, witnessing unimaginable loss and the incredible strength of those who came together in the aftermath.

Years later, my son became an iron worker and helped build the Freedom Tower.

Three generations of my family have been connected to that site: my dad helped build the original towers, I witnessed their destruction and its aftermath, and my son helped build a symbol of resilience and renewal.

That connection reminds me of the countless lives forever changed by September 11—the workers who built, the first responders who served, the families who lost loved ones, and everyone who continues to carry those memories.

We must never forget.

But remembering is also about what we carry forward: courage, purpose, compassion, and hope.

That same belief drives my commitment to raising awareness for Myotonic Dystrophy. Families living with this disease face challenges that are often unseen, yet their strength and perseverance are extraordinary.

September 11 and the journey of those affected by Myotonic Dystrophy remind us that life can change in an instant, but they also show us the strength we can find in one another.

We carry the memories. We honor those we lost, those who served and rebuilt, and those facing difficult journeys today.

There is strength in connection, purpose in remembrance, and hope for generations to come.

09/13/2026

Lack of familiarity by healthcare professionals can allow to be misdiagnosed for decades. 🧑‍⚕️🩺People living with DM need access to testing and counseling to receive appropriate healthcare. 💚🔗Learn more at: https://www.myotonic.org/international-dm-day

09/13/2026

Myotonic dystrophy symptoms usually become more severe with each generation, yet there is currently no cure and no approved treatments. 🔬💚Help us get closer to better care and a cure by spreading awareness on September 15! 🔗Learn more at: https://www.myotonic.org/international-dm-day

09/12/2026

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Rock Hill, SC

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