Grit with Grace : Abbigail's Journey with Rett Syndrome

Grit with Grace : Abbigail's Journey with Rett Syndrome This is all about our sweet Abbigail and the journey we are on with her diagnosis of Rett Syndrome, a rare neuro-developmental disorder. This girl, Miss.

Abbigail Mae Jackson, has brought more light into our world than we could have ever hoped for. She is are guiding light through this less than walked journey for hope. Your smile is contagious, your laugh is infectious and your excitement to learn more about this world gives me hope everyday. The world had to make room for a little more fancy the night you were born. I remember it like yesterday,

checking in at 7 a.m., changing clothes, running tests....everyone was getting ready for your big debut. I just sat there and listened to my music (part of my birth-plan). Nurses were checking things, your dad was ALL over the place, your Gigi by my side, your aunt chattering about the days excitement (while addressing her christmas cards), your Grandad calm and collective (in that uber irritating, why don't you understand my anxiety, type of way), your grammy Sue Sue and Jo chattering in the corner while I was in labor. Dr. Jacoby was away at Baylor, so they had to hold off for an hour or two. Pleasant, that was. At 6:00pm on the dot, you made your entrance into the world. Your father was beaming from ear to ear, I was balling my little eyes out and everyone was exclaiming how PERFECT you were. You still are. Perfect. My one in 12,000 girl, NO! You are my one in a million. There is no other little warrior out there that could have made it through everything your little soul has had to endure. Countless doctors, endless therapies, numbers of evaluations, studies, overnight EEG's, EKG's, 3 MRI's to date, tubes and just the usual check-ups. You are our TROOPER. I know no one stronger than you, my darling. We will pray, fight, fundraise and hope there is a cure to give you the future you deserve. The voice that was meant for you. The mobility that was yours. The life he set aside for you. For that we will fight. Fight everyday for a cure.

03/14/2019

For anyone who has questions about how gene therapy would help girls with Rett Syndrome, watch this. 💜 🧬

03/06/2019

Thankful for the supporters in this two minute video that shows you a little bit about what defying the odds means. It gives you a glimpse into what these girls can do when given a chance. Every Rett girl is so much more than their diagnosis. I heard someone ask my husband if he thought therapy was working and we always respond yes. We don’t do what we do just for fun. A minute spent on therapy is never a waste of time. Never. We do what we do for her. To give her a chance. To keep the skills we still have. To work towards new goals, cross barriers, obtain new skills and exceed the doctors expectations. We do it because we know she can. All you need if faith, trust and an attitude to never give up. We love you Abbigail Mae. ❤️❤️❤️

10/01/2018

October is Rett Syndrome Awareness month. 3 years ago I didn’t know what Rett Syndrome was. Now it’s my goal to help people understand what Rett Syndrome is and create awareness. I can’t tell you how many doctors, teachers, nurses, therapists and specialists have never heard of Rett. Had you heard of Rett Syndrome before you met Abbigail or our family? Help spread the word. Share this post. Google Rett Syndrome. 17 girls a day. 1 in 10,000 births. There is HOPE. 17 clinical trials with more in the works. If cured, it could also help Alzheimer’s, Parkinson’s and many others. Help us create awareness for Rett Syndrome 💜💜💜

09/06/2018

💜💜Check out this documentary that will talk about Rett Syndrome 💜💜

Thursdays are for therapy. 🎉👸🏼💗
06/14/2018

Thursdays are for therapy. 🎉👸🏼💗

Great read. “When outsiders make suggestions most of the time from a loving place, it kills me a little. It always makes...
04/04/2018

Great read.

“When outsiders make suggestions most of the time from a loving place, it kills me a little. It always makes me feel less than. Like I’m not doing enough when I’m giving all that I have.”

As autism awareness month continues, I'm flooded with so many thoughts and emotions. Most days I'm brave and a warrior mom but sometimes I crumble too.

17 girls a day. 1 in 10,000 births. Statistics are changing daily as many have been misdiagnosed. Had you heard or Rett ...
10/04/2017

17 girls a day. 1 in 10,000 births. Statistics are changing daily as many have been misdiagnosed. Had you heard or Rett syndrome before you met me or Abbigail? I can say I was clueless to this syndrome until her Occupational Therapist mentioned it during a session last October. I googled and read WebMD and my heart sank. I knew. A month and half later it was confirmed. Help me spread awareness & knowledge. Share this post. Share our story.

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Rett could be reversed one day. That could help lead to a cure for countless disorders. There are numerous trials in pro...
10/03/2017

Rett could be reversed one day. That could help lead to a cure for countless disorders. There are numerous trials in progress right now. There is hope. Pray for a cure. Spread the word. Share this post. Tell someone you know about Abbigail. Google Rett Syndrome.

October is Rett Syndrome awareness month. I'll be posting info to help educate and spread knowledge on Rett Syndrome thr...
10/02/2017

October is Rett Syndrome awareness month. I'll be posting info to help educate and spread knowledge on Rett Syndrome throughout the month. If you have any questions feel free to ask!
Ryan Jackson Meggan Dinham Jackson

Abbigail Mae had a great first week at school! She loved seeing her teachers and teacher aides. I am so excited to see w...
08/27/2017

Abbigail Mae had a great first week at school! She loved seeing her teachers and teacher aides. I am so excited to see what this school year holds for you sweet girl!! #2017 Meggan Dinham Jackson Ryan Jackson

This video shows Kassie Wood Morell's family and her girls Cure Rett For Kenzie And Kaylie journey. Such a beautiful and...
08/23/2017

This video shows Kassie Wood Morell's family and her girls Cure Rett For Kenzie And Kaylie journey. Such a beautiful and strong family. We hope to meet you guys someday! 💜💜 Rettsyndrome.org

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