22/05/2026
30 years with Ulcerative Colitis and only 1 flare in the last 10 years.
I didn't realise this until recently when I was talking with another person living with IBD. I told them I just realised that it had been 30 years since I was diagnosed, to which they responded 30 years I couldn't imagine. It was a light-hearted discussion but afterwards it hit me.
30 years living with UC!
Which got me looking back at how life had been over those 30 years, how life had changed, how it felt to be diagnosed, how it felt battling with flares and being unwell and the difference between the first 20 years and the last 10 years.
1 flare in the last 10 years. When I speak with my specialist he is always surprised by the 7 years flare and symptom free before my last flare. I know that I am back at the same place now, waiting on tests to confirm but no symptoms at this point in time.
The first 20 years were a very different story, not many periods without symptoms, flaring a lot, hospital stays and the other things that come with IBD.
The turning point?
Focusing in on stress.
The medication was getting stronger, it was harder to get flares under control and the longer you have the disease the worse it can get.
I know there had to be more that could be done to support, help heal, bring things under control. I knew, we all knew, we are all told stress can impact your IBD.
I started there and never looked back.
My first step meditation. Followed by personal healing and development work, learning and understanding why this all seemed to work, more learning, more work and tools for my overall wellbeing,
With World IBD Day having just been, friends and people I know suffering from IBD & autoimmune diseases and more time on my socials. I see the suffering, the pain, the hopelessness, overwhelm that comes.
I have been reminded of why I started my studies, what I wanted to do with my life and it's time to step into this calling now.
This is the beginning point. Sharing what I have learnt and offering support.
I encourage you to stick around, to connect and hopefully understand why this side of our healthcare needs to be spoken about more than it is now.